Efter världens värsta nyheter flyg hela familjen som galningar ner till Umeå..... doktorer började med ta biopsi från tumören. Efter 10 dagar fick vi resultat för biopsi. ... livet rasade framför mitt ögon ... min hjärna fick black out och kan inte ta emot information längre.... jag tänkte det är ett mardröm och jag kommer vakna från den snart .
diagnosen är Aggressiv malign tumör som heter Neuroblastom .. :(
Dagen efter startade de cellgift behandling. Behandlingen består av 8 block med cellgift varje 10 dagar i 80 dagar ... .
Tufft början hade vi. många komplikationer med CVK..
Risk för infektion var som en skugga hela tiden med oss ..
När tänker jag på hur tuff läget är min hjärta stopper. Vi träffade många familjer på sjukhuset som var redan klara eller dem som har gått halva vägen eller de lika oss ny har börjat i den långa resa...
Deras erfarenhet och hur tuff de är har get mig styrka för att acceptera sjukdomen och ta emot vad doktorer berättar till oss...... T
änka positiv är viktig i nu läget.
Det ända vi kan göra leva med den och hitta styrka för att go igenom den svåra läget just nu....
under behandlings tid var lite olika upp och ner.
vi hade bra dagar och väldigt dåliga dagar.
Vi klarade oss som ett familj jag och min man och våra 4 årig dotter bott i sjukhuset med våra sjuka son ganska länge ...
Jag vet inte varifrån fick jag styrka och stark tru i den svåra läget, men jag klarar mig och jag är stark ..fortfarande finns det mycket och göra klar. Våra resa är inte slut än
Vi kämpar fortfarande med cancer......
vi hoppas och jag tror att allt kommer gå bra
In English
After the world's worst news fly the whole family like crazy to Umeå ..... doctors began to take biopsy from the tumor.
After 10 days we got results for biopsy. ... life collapsed before my eyes ... my brain got black out and can not receive information anymore .... I thought it's a nightmare and I will wake up from it soon.
diagnosis is Aggressive malignant tumor called neuroblastoma .. : (The day after they started chemotherapy . Treatment consists of 8 blocks of chemotherapy every 10 days for 80 days ... .Tough start we had . many complications with CVK ..Risk of infection was like a shadow all the time with us ..
When I think of how tough the situation is my heart stopper . We met many families at the hospital who were either completed or those who have passed the half way or they like us new has begun the long journey ...Their experience and how tough they are has given me the strength to accept the disease and accept what doctors tell us ...... Twidow positive is important in your situation .
The only thing we can do to live with it and find the strength to go through the difficult position right now ....during the treatment time was a little different up and down .
we had good days and really bad days.
We made it as a family my husband and I and our 4 year old daughter stayed in the hospital with our sick son for quite some time ...I do not know where I got the strength and strong tru in the difficult situation , but I'm fine and I'm strong .. still there is much to do and complete. Our journey is not over yet
We are still struggling with cancer ......
we hope and I believe that everything will go well
diagnosis is Aggressive malignant tumor called neuroblastoma .. : (The day after they started chemotherapy . Treatment consists of 8 blocks of chemotherapy every 10 days for 80 days ... .Tough start we had . many complications with CVK ..Risk of infection was like a shadow all the time with us ..
When I think of how tough the situation is my heart stopper . We met many families at the hospital who were either completed or those who have passed the half way or they like us new has begun the long journey ...Their experience and how tough they are has given me the strength to accept the disease and accept what doctors tell us ...... Twidow positive is important in your situation .
The only thing we can do to live with it and find the strength to go through the difficult position right now ....during the treatment time was a little different up and down .
we had good days and really bad days.
We made it as a family my husband and I and our 4 year old daughter stayed in the hospital with our sick son for quite some time ...I do not know where I got the strength and strong tru in the difficult situation , but I'm fine and I'm strong .. still there is much to do and complete. Our journey is not over yet
We are still struggling with cancer ......
we hope and I believe that everything will go well
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